Fantastic I'm finally a blogger. Did I even spell it correctly? Anyway, I've decided this is a perfect way to keep everyone up to date about our family and Sascha's new chapter. If you didn't know by now, our little precious Sascha has been diagnosed with Juvenile Dermatomyositis. In short it is basically an autoimmune disease that affects her face with a visual rash (along with hands, knees and elbows). The scary part is she also may/or has the experience with muscle inflammation.
Tomorrow we leave for Chicago and Wed. morning Sascha's has her MRI done for JDM. We are super scared and not sure what to expect. Dr. Pachman is apparently the best in her field dealing with JDM. We get to meet her and her staff in the afternoon. She may be poked for a few hours but hopefully it is something that the great American Girl store can fix for us. She has been wanting that doll for a year now. Sascha isn't sure what to expect on this visit but is super excited to travel without her siblings. She asked Diego if he would be sad and miss her, his response "hmmm, hmmm, hmmm, NO." Her response, "Hmmm, I didn't expect that answer, that makes me kind of sad."
So after I know more we will let you know more. Thanks to so many of you for your prayers and well wishes via text, email and phone. It really does mean a lot. Also if you are in town and Carmen calls you, pls answer, we left her behind with Jaz and Diego. We just hopes she survives.
So in short, Sascha is doing great and still a smarty pants. Diego still loves to play and is full of hugs and kisses. Jazzy is still wondering why her mom is so strict and planning new ways not to clean.
We hope to make this journey through in one piece.
peace and love always
miranda (Doris for you old schoolers :))
1 comment:
Thanks so much for keeping us in the loop. We've been keeping you in our thoughts and prayers over the past week, and will continue to do so. Hugs to all of you.
love,
Liz, Anthony & Ella
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