Wow what a day. She did very well with her MRI. They could not sedate her so everyone here had doubts to whether a 4yr can go 30min in a loud machine without moving. They couldn't sedate due to more tests hrs later. She did fantastic and was the talk of the hospital. We were very excited, considering the whole day would be dictated on how well she did with this machine. We then came home and crashed for a couple of hrs. Due back at the hospital at 1pm and we finished at 4:30pm. We were busy the whole time. Totally fell in love with Dr. Pachman and her staff. Super professional and informative. I've never meet a physician so invested from the start. After the end of the day they drew a lot of blood and she just basically fell straight asleep on Alonzo's shoulders. Poor baby she was a trooper. So far we know that the MRI did not show any muscle inflammation at this time. That was GREAT news. She did however show weakness in her neck. Also her hands show signs that she has had this disease for a little while now. Tomorrow we meet with the surgeon and Friday morning we have the muscle biopsy. Friday night we will head back home.
BTW~ The American Girl store was a HUGE hit with Sascha but not so much with Alonzo. He lost about 4 shades of color when he saw the prices. During check-out he didn't look so good. Overall it was a successful day. We are spent. Peace and love.
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